Taking action to achieve your goals is imperative but what if you don’t have any goals or understand what you want to do, how can you? Last week I wrote about my next chapter titled ‘The Next Chapter’ which you can see here
so this week I will start to explain what I have been doing.
My first investigation was to see where I could go locally that was dog free as my daughter Ellie, who has Down’s Syndrome is frightened to death of dogs. Whilst we, as parents, work closely with her to encourage her to be brave and to let dogs walk on by. It was beginning to feel disheartening to find many let their dogs off leads in public and more recently I spotted a dog in our local children’s park. That was the last straw, as they say and the day I began to take action. I emailed, telephoned and researched and then went live on Facebook with Ellie to explain our findings (see here)
Next stage; journalling which began on a daily basis, often twice a day, just writing down my thoughts, what I wanted to achieve in life, who was I, could I inspire or motivate others? During this time I felt that most children with Down’s Syndrome were supported very well from birth through therapists, community groups and lots of resources from the Down’s Syndrome Association but I felt it was a different story once they became teenagers and this was something I wanted to address.
However after various conversations and finding a Facebook group which provided this support, for secondary school age (see here)
it appears there is plenty of material out there, just maybe not advertised as much which I could find and share.
I then turned my attention to social activities as I didn’t believe I had seen many for teenagers with Down’s Syndrome, but once again there are a few but still a lot of work in this area needs to be addressed. A local Down’s Syndrome group advertises such activities in the South Manchester area, (see here)
and these include movie nights, pizza nights and plenty of football action can be seen at Manchester City. In addition, I am hoping to restart our local Bury support group and work closely with parents to see what other ways we, as parents and carers can support our children to help them reach their full potential and be included in the community.
So that’s me for this week, until next time. Feel free to connect with me via @linktr.ee/shaz_crowley or share to anyone that may also find these links useful and thank you, as always, for reading.