It’s a common saying isn’t it? ‘If only I knew then what I know now’ but this couldn’t be more relevant to me as I recently celebrated my daughters 10th birthday. Ellie was born with Down’s Syndrome and diagnosed a few hours later; for those parents in the same situation you can only imagine the thoughts that ran through my head at that time (but that’s for a different post).

So I wanted to share with you some notions, with the help of other parents, that I wish I had known back then, in case you are reading this as a first time parent.

Ellie on holiday aged 2

One important thing to remember is your child is unique and has your genes, so whilst there will be similarities with others born with Down’s Syndrome they will be more like you than you realise. In addition due to the wide spectrum of learning difficulty in Down’s Syndrome, you cannot predict what your child will or won’t be able to do.

From a mum, here are her words “There is no need for fear, my son brings me more joy than anyone ever could…..he makes me proud every single day.”

You may become or you may not fixated with milestones (I sure did) but when your child hits them, and they will in their own unique way; you will be over the moon, jump up and down, record it and cry with laughter 🙂

Other parents with a child with Down’s Syndrome will become your best friends as they understand exactly what you’re going through. I can strongly recommend joining a supportive group as soon as you feel ready (one link is below and another in linktr.ee/shaz_crowley)

Forget the myths and sterotypes; most people with Down’s Syndrome are living a completely different independent life to those from only a few decades ago due to medical progress, interventions, inclusion and technology; Ellie is a whiz on her ipad (see previous blog)
https://sharoncrowley.wordpress.com/2019/05/08/challenging-some-myths-and-stereotypes-around-downs-syndrome/

Yes there will be downs as well as ups, yes there may be lots of appointments, health issues and other additional needs to contend with but from one mum to another; you can do this. Have faith, trust your gut instinct every time and enjoy the delight of being a mum. There will be lots of happiness to come and your child will not only enrich your life but everyone else they meet. They will give you some fresh ideas on life and expectations so believe that everything is going to be alright.

Pouty

A special thank you to the parents of this group (#wouldntchangeathing) for their words of wisdom and insights
https://www.facebook.com/wouldntchangeathingdotorg/

Thank you as always for taking the time to read and if you would like to connect with me, connect via @linktr.ee/shaz_crowley

Until Next Time
Sharon x

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